Exploring the Life Domains

Caregiver Well-Being

Providing care and support for a loved one can be both a rewarding and challenging role. Understanding how to care for oneself while supporting someone else takes intentional reflection, exploration, planning and problem-solving to ensure a good life for everyone.

As we care about and for the people in our lives, it is important to recognize the support that we need to maintain our own well-being and good life.

Each one of us have various roles and responsibilities that impact our day-to-day life and overall well-being. At times these roles may feel comfortable, and at other times the responsibilities may feel overwhelming or challenging. Taking time to understand what you want and need for your own-well-being and good life is critical to maintaining your physical, mental, and emotional wellness, but can become secondary to the planning, problem-solving, and supporting you are doing with or on behalf of your loved one.

Focusing on Oneself

There are other reasons it may feel difficult to care for yourself while you are caring for others. Caregivers have described some common experiences that prevented them from focusing on their own well-being, such as:

  • Stress, overwhelm or lack of time due to caregiving responsibilities.
  • Feelings of guilt or concern about the reaction of their loved one if they are not available
  • Navigating the emotional impact of a reversal of roles that may exist when caring for a family member or loved one
  • Wanting to avoid being “needy” or burdening others by asking for help or support
  • Not knowing or understanding what may be possible, including the resources that are available or how to access them

Reflecting on Your Role

The information and tools provided here are designed to help you in determining how to address those experiences – and others that may be unique to you and your caregiving journey. They facilitate a focus on your own well-being and needs, while continuing to recognize the interconnection and impact of the role you play (and responsibilities you have) in the lives of others. The tools provide guidance and prompting to help you reflect on what is most important to and for you, so that you can:

  • Gather and organize ideas about your current experiences and circumstances, and your priorities for the future
  • Consider how to maintain your own physical, emotional, and mental well-being
  • Make decisions and plan for next steps
  • Clearly articulate what you want and need so that you can share and communicate with others
  • Connect with other people and resources to support you while you support your loved one

The LifeCourse Nexus Training and TA Center is pleased to partner with Elevance Health to co-develop and disseminate best practices for supporting (family/informal/unpaid) caregivers. The development partnership resulted in a Caring For Yourself While Caring for Others toolkit to support people who are providing formal or informal care for a loved one to plan for their own well-being, while continuing to acknowledge the role they play in the lives of others. To learn more, click here.

There are other reasons it may feel difficult to care for yourself while you are caring for others. Caregivers have described some common experiences that prevented them from focusing on their own well-being, such as:

  • Stress, overwhelm or lack of time due to caregiving responsibilities.
  • Feelings of guilt or concern about the reaction of their loved one if they are not available
  • Navigating the emotional impact of a reversal of roles that may exist when caring for a family member or loved one
  • Wanting to avoid being “needy” or burdening others by asking for help or support
  • Not knowing or understanding what may be possible, including the resources that are available or how to access them

The information and tools provided here are designed to help you in determining how to address those experiences – and others that may be unique to you and your caregiving journey. They facilitate a focus on your own well-being and needs, while continuing to recognize the interconnection and impact of the role you play (and responsibilities you have) in the lives of others. The tools provide guidance and prompting to help you reflect on what is most important to and for you, so that you can:

  • Gather and organize ideas about your current experiences and circumstances, and your priorities for the future
  • Consider how to maintain your own physical, emotional, and mental well-being
  • Make decisions and plan for next steps
  • Clearly articulate what you want and need so that you can share and communicate with others
  • Connect with other people and resources to support you while you support your loved one

The LifeCourse Nexus Training and TA Center is pleased to partner with Elevance Health to co-develop and disseminate best practices for supporting (family/informal/unpaid) caregivers. The development partnership resulted in a Caring For Yourself While Caring for Others toolkit, including resources to support people who are providing formal or informal care for a loved one to plan for their own well-being, while continuing to acknowledge the role they play in the lives of others. To learn more, click here.

Getting Started

The Caregiver Toolkit is intended to help you as a caregiver to care for yourself while caring for a loved one. But thinking or talking about one’s life or the future is very personal and can be overwhelming.

It can be a reminder of how much roles have changed, of unrealized dreams and goals, or the uncertainty and fears about the future. If considering your current life circumstances or thinking about the future is difficult, remember to take care of yourself as you go.

Here are a few ideas to help you deal with stress or other emotions that may come up:

The tools in this section are designed to help caregivers and those providing support to a loved one to think about your own well-being, and how to best care for yourself while you are caring for others.
These tools are intended to be used by and focus on the person providing care and support. In completing these tools, you may find it helpful to do deeper exploration, planning and problem-solving specific to your loved one. Tools for planning with and for the person you support can be found here.

Caregiver-Site_Breaks

Take breaks, as often and for
as long as you need.

Caregiver-Site_Space

Choose a space that is
comfortable for you.

Caregiver-Site_Balance

Treat yourself the way you would treat
a good friend

Caregiver-Site_Breathing

Practice breathing or
mindfulness exercises.

Caregiver-Site_Friends

Seek support from a trusted friend
to be a sounding board.

One-Page Description

Reflect upon and gather ideas of what matters most related to your experience in supporting or caring for a loved one. Think about both what your life and caregiving role looks like now – and what you want it to look like in the future – as you capture important information to inform planning and problem-solving.

Trajectory

Explore and plan for your life and well-being, especially as you are caring for others. Consider what you want and need – both now and in the future – both for your overall good life, and in your role of supporting your loved ones.  Make decisions and organize next steps for what will help you on the path towards that vision.

Integrated Supports Star

Map the resources you have to support you in all of your myriad roles (including, but not limited to, supporting and caring for others), and brainstorm potential resources that can be leveraged to ensure the person you are caring for has the support they need so that you are able to focus on your personal well-being.

Mapping Supports for the Caregiver

Brainstorm how you most want and need to be supported so you can best care for your loved one and maintain your good life. Think about what you need – what would be most helpful to you – and identify various ways of ensuring you are cared about and cared for both now and in the future.

Mapping Supports for the Person Receiving Care

Consider the individual and unique ways in which those we support want to be cared about and cared for, as well as to identify ways in which those needs can be met that make sense for the person and for the one(s) caring for them. Identify ways to create a balance for you as a caregiver – making sure you are able to care for yourself while continuing to provide support for your loved one.

Life Domain Vision Tool

Brainstorm and dialogue with the person you are supporting about a shared vision for each area of your life, and what is most important to consider or do to make sure you both have what you want and need in each life domain.

CtLC Portfolio: Caring for Yourself While Caring for Others

The Charting the LifeCourse Caregiver Well Being Portfolio is designed as a booklet printed on 11×17 paper. It includes the One-Page Description, CtLC Trajectory tool on the inside and the Integrated Supports Star on the back.

How To Use These Tools

The tip sheets in this section are designed to serve as a guide to help you use the tools above to explore, plan, problem-solve and make decisions about how to best care for yourself while you care for others.

Completing any of the CtLC tools just for the sake of completing them should never be the goal. The tools are designed to help you reflect and organize your thoughts and ideas in ways that help you and your loved one plan, problem-solve, make decisions, and find supports to help both of you be physically, mentally, and emotionally well. They are meant to guide conversations between you and your loved one, other family members, or with professionals.

The tools can be completed over time, taking time to reflect and return to the process as often as needed. Even when complete, they should be revisited from time to time, especially as life or role changes happen.

Tip Sheet: One-Page Description

This tip sheet can help guide your reflection of your experiences in providing care and support to others. Use the prompts and questions in each section to facilitate your exploration of what is important to and for you.

Tip Sheet: Trajectory

This tip sheet provides an overview of how and why to use the Life Trajectory –Caring for Yourself While Caring for Others tool.  It gives suggestions on how to complete and use the trajectory, and includes specific guidance and prompts for each of the sections of the trajectory.



Tip Sheet: Integrated Supports Star

Use this tip sheet to discover how to use the Integrated Supports Star tool to explore different kinds of resources that will help support you and your loved one. Identify ways to ensure the needs of your loved one are met, and consider who – or what – can help you maintain your well-being.

Tip Sheet: Mapping Supports for the Caregiver

This tip sheet explains how to use the Mapping Supports for the Caregiver tool to explore the supports you want and need as you continue to care for others. The importance of considering Caring About and Caring For is explained, and specific guidance and prompts are provided for each section of the tool. 

Tip Sheet: Mapping Supports for the Person Receiving Care

Use this tip sheet to guide use of the Mapping Supports tool with your loved one to identify specific ways in which others can provide care and support. Step-by-step guidance for how to complete the tool, including what to consider related to Caring About and Caring for a person, is included. 

Tip Sheet: Life Domain Vision Tool

This tip sheet guides exploration of each life domain, including the topics and sub-topics that may be important to consider for the overall quality of life for you and your loved one. Tips for how to complete the tool in a way that considers the wants and needs of everyone and facilitates discussion about how to move toward a shared vision are included.

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